Can Bad Luck Explain the Struggles of Teenage Cousins with Inoperable Brain Tumors?

Lachlan Lindsay and Hazel Dempster, two cousins from Scotland, share a unique bond formed through their battles with brain tumours. Diagnosed at a young age, both have faced significant challenges, yet they demonstrate resilience and a sense of humour in the face of adversity. Their stories highlight the complexities of living with such conditions and the impact on family life, as well as the importance of support and awareness around brain tumours.

Last updated: 25 October 2023 (BST)

What’s happening now

Currently, both Lachlan and Hazel are managing their ongoing health conditions while pursuing their educational and personal goals. Lachlan is studying at the University of Aberdeen, while Hazel is focusing on her Highers at Kirkcudbright Academy. Their experiences have not only strengthened their familial bond but also increased awareness about brain tumours within their communities. Despite the challenges they face, both teenagers convey a sense of normalcy in their lives, highlighting their resilience and determination.

Key takeaways

• Lachlan and Hazel are cousins who both face challenges due to brain tumours.
• Hazel underwent multiple surgeries and chemotherapy but now maintains a relatively normal life.
• Lachlan's tumour has resulted in dyspraxia, affecting his coordination and processing speed.
• Both teenagers use humour to cope with their situations, enhancing their close relationship.
• The support of family and fundraising efforts for brain tumour research are crucial for both families.

Timeline: how we got here

Both Lachlan and Hazel's stories began with their respective diagnoses, which have shaped their lives significantly:

• 2017: Lachlan Lindsay diagnosed with a brain tumour at age 8.
• 2019: Hazel Dempster begins experiencing headaches and is diagnosed with a brain tumour at age 12.
• 2019-2023: Hazel undergoes multiple surgeries and chemotherapy treatments.
• 2021: Lachlan diagnosed with a tectal plate glioma; experiences fluid build-up and surgery.
• 2023: Both continue to manage their conditions while pursuing education and personal interests.

What’s new vs what’s known

New today/this week

Recent updates from both teenagers indicate that they are maintaining stable health conditions. Hazel continues her daily oral chemotherapy, allowing her to engage in normal activities despite previous limitations, while Lachlan is navigating university life despite his ongoing challenges.

What was already established

It is already known that both Lachlan and Hazel have been diagnosed with different types of brain tumours, which have required various treatments. Their journey through surgeries and therapies has been marked by resilience and a strong support system from family and friends.

Impact for the UK

Consumers and households

The experiences of Lachlan and Hazel underscore the emotional and financial strain that brain tumours can impose on families. Their stories highlight the need for accessible medical support and mental health resources for affected families, as well as the importance of community awareness and fundraising for research into brain tumours.

Businesses and jobs

For families dealing with health challenges, job security can often be compromised. The need for flexible work arrangements and support from employers can help families manage their circumstances more effectively. Hazel's mother, Emma Christie, has turned to fundraising to support research, showcasing the role of community engagement in tackling health issues.

Policy and regulation

There is a growing recognition of the need for policies that support families dealing with chronic illnesses, including brain tumours. Upcoming consultations and discussions in the UK about healthcare policies may focus on improving access to care and support services for families facing such challenges.

Numbers that matter

• 1 in 500: The estimated risk of developing a brain tumour in children.
• 6: The number of surgeries Hazel has undergone since her diagnosis.
• £3,000: Funds raised by Emma Christie for The Brain Tumour Charity.
• 2: The number of cousins in one family diagnosed with brain tumours.
• 16: Hazel's current age, demonstrating her resilience and achievements despite her condition.

Definitions and jargon buster

• Brain Tumour: An abnormal growth of cells in the brain, which can be benign or malignant.
• Astrocytoma: A type of brain tumour that originates from star-shaped cells called astrocytes.
• Dyspraxia: A condition affecting physical coordination, often impacting motor skills and movement.
• Chemotherapy: A type of cancer treatment that uses drugs to kill or slow the growth of cancer cells.

How to think about the next steps

Near term (0–4 weeks)

Both Lachlan and Hazel will continue their respective treatment regimens and educational pursuits. Regular medical appointments will remain essential for monitoring their conditions and managing any side effects.

Medium term (1–6 months)

As they progress through their treatments, continued focus on mental health and community support will be vital. Hazel's ability to engage in school activities and Lachlan's university studies will also shape their experiences moving forward.

Signals to watch

• Updates on health status from both Lachlan and Hazel.
• Changes in treatment protocols or new therapies being introduced.
• Community fundraising efforts for brain tumour research.

Practical guidance

Do

• Maintain regular medical check-ups for monitoring health conditions.
• Engage with support groups for emotional and practical assistance.
• Promote awareness and fundraising initiatives for brain tumour research.

Don’t

• Ignore the emotional impact of chronic illness on family dynamics.
• Neglect self-care and mental health needs during treatment.
• Underestimate the importance of community support and resources.

Checklist

• Are regular medical appointments scheduled?
• Is there a support network in place for emotional assistance?
• Have fundraising or awareness initiatives been considered?
• Is there a plan for managing side effects of treatment?
• Are educational needs being addressed effectively?

Risks, caveats, and uncertainties

While Lachlan and Hazel's conditions are not believed to be genetically linked, the rarity of two cousins experiencing brain tumours raises questions about potential environmental or genetic factors. Ongoing research into brain tumours is crucial for understanding the causes and improving treatment options. The uncertainties regarding the future health of both individuals remain, as brain tumours can change over time, necessitating continuous monitoring and adaptation of treatment strategies.

Bottom line

Lachlan and Hazel's experiences reflect the profound impact of brain tumours on young lives and the importance of family support. Their stories highlight resilience in the face of adversity and the necessity for greater awareness and research into brain tumours to support affected families in the UK.

FAQs

What types of brain tumours do Lachlan and Hazel have?

Lachlan has a tectal plate glioma, while Hazel has an optic chiasm pilocytic astrocytoma. Both are benign but impact their daily lives significantly.

How do Lachlan and Hazel cope with their conditions?

Both use humour and a positive outlook to cope with their conditions. They focus on their education and activities, maintaining a sense of normalcy.

What support is available for families dealing with brain tumours?

Families can access support groups, financial assistance, and resources from charities like The Brain Tumour Charity, which also promotes awareness and research funding.