Can Robert Aramayo's Call for Grace Change the Conversation Around Tourette's?

Robert Aramayo has used his recent Bafta wins to advocate for greater understanding of Tourette syndrome, a condition often misrepresented and misunderstood by society. After the actor's emotional acceptance speech for his role as Tourette's campaigner John Davidson in the film *I Swear*, he emphasised the need for grace and education surrounding the condition, particularly in light of a controversial incident during the ceremony involving Davidson.

Last updated: 14 October 2023 (BST)

What’s happening now

The recent Bafta ceremony showcased not only Aramayo's talent but also highlighted an important conversation around Tourette syndrome. During the event, Davidson, who has Tourette's, caused a stir by shouting offensive words at presenters Michael B. Jordan and Delroy Lindo. This incident raised significant discussion regarding the public's perception of Tourette's and the need for empathy towards those living with the condition. Aramayo's subsequent comments have reignited this debate, urging society to educate themselves on the complexities of Tourette's and the experiences of individuals like Davidson.

Key takeaways

• Robert Aramayo won two Bafta awards, bringing attention to Tourette syndrome.
• John Davidson's outbursts at the ceremony have sparked discussions on Tourette's misunderstandings.
• Aramayo called for grace and education about the condition to foster better understanding.

Timeline: how we got here

Since Davidson was diagnosed with Tourette's at age 25, he has become a prominent advocate for the condition. His appearances and advocacy work culminated in the recent events at the Baftas:

• 2019: Davidson received an MBE for his services to disability awareness.
• October 2023: Davidson yells slurs during the Bafta ceremony, leading to widespread discussion on Tourette syndrome.
• October 2023: Aramayo wins the Bafta for best actor and uses the platform to discuss the importance of understanding Tourette's.

What’s new vs what’s known

New today/this week

Aramayo's advocacy following his Bafta wins has brought a fresh perspective to the conversation about Tourette syndrome. He has called for better education and understanding of the condition, emphasizing that tics can manifest in various ways beyond what is commonly recognised.

What was already established

Tourette syndrome is characterised by involuntary tics, which may include both physical movements and vocalisations. The condition is often misunderstood, leading to stigma and misinterpretation of the behaviours exhibited by those affected.

Impact for the UK

Consumers and households

The recent discussions surrounding Tourette syndrome could lead to increased awareness and sensitivity towards those affected by the condition. As society becomes more informed, there is potential for enhanced support systems for individuals with Tourette's and their families.

Businesses and jobs

As awareness grows, businesses may need to adapt their policies to foster inclusive environments for employees with disabilities like Tourette syndrome. Training and education about such conditions can help create more supportive workplaces.

Policy and regulation

With heightened public awareness, there may be calls for governmental policy changes regarding disability rights and education. Advocacy from public figures like Aramayo and Davidson could influence future legislation aimed at improving the lives of those with Tourette syndrome.

Numbers that matter

• 1 in 100 children are estimated to have Tourette syndrome, highlighting its prevalence.
• Approximately 60% of individuals with Tourette's also experience additional mental health conditions.
• Davidson’s advocacy work has reached thousands, raising awareness about the condition across various platforms.

Definitions and jargon buster

• Tourette syndrome: A neurological disorder characterised by repetitive, involuntary movements and vocalisations called tics.
• Tics: Sudden, rapid movements or sounds that are involuntary and occur repeatedly.
• MBE: Member of the Order of the British Empire, an honour awarded for significant contributions to society.

How to think about the next steps

Near term (0–4 weeks)

Expect increased media coverage on Tourette syndrome, with potential for more educational programmes addressing the condition.

Medium term (1–6 months)

Advocacy groups may leverage this momentum to push for policy changes and greater funding for research into Tourette syndrome.

Signals to watch

• Increased engagement in public forums discussing disability rights.
• Potential legislative proposals aimed at improving support for individuals with Tourette syndrome.
• Media initiatives focused on educating the public about Tourette's and other neurological conditions.

Practical guidance

Do

• Educate yourself about Tourette syndrome and its impact on individuals.
• Encourage open conversations about disability in your community.
• Support advocacy efforts for disability rights and awareness.

Don’t

• Don’t make assumptions about individuals based on their tics or behaviours.
• Don’t dismiss the experiences of those living with Tourette syndrome.
• Don’t ignore the importance of education and awareness in combating stigma.

Checklist

• Review resources on Tourette syndrome for a deeper understanding.
• Attend or support local events that promote disability awareness.
• Engage with online communities focused on Tourette syndrome advocacy.

Risks, caveats, and uncertainties

The recent incident at the Baftas has sparked intense debate, with varying opinions on Davidson's behaviour and the appropriateness of the language used. While many advocate for understanding and patience, others express concern over the potential for harm caused by offensive language, regardless of the circumstances. It's crucial to navigate this discussion with sensitivity, recognising that Tourette syndrome manifests differently in every individual.

Bottom line

The events at the Baftas have brought crucial attention to Tourette syndrome, highlighting the need for greater understanding and empathy. As public discourse evolves, it is essential for society to engage in meaningful conversations about disabilities and their complexities, fostering an environment where everyone can feel respected and understood.

FAQs

What is Tourette syndrome?

Tourette syndrome is a neurological condition characterised by involuntary tics, which can be both motor and vocal. Understanding this condition is essential for fostering empathy and support.

Why did Davidson shout offensive words during the Baftas?

Davidson's outbursts were involuntary expressions of his Tourette syndrome, which can include swearing and other strong language. This highlights the complexities of living with the condition.

How can society better support individuals with Tourette syndrome?

Education and awareness are key. By learning more about Tourette syndrome, society can create a more inclusive environment, recognising the challenges faced by those affected.