What Symptom Exposed a 15-Year Brain Tumor?

This article recounts the extraordinary journey of Nicole Cutler, who unexpectedly discovered a brain tumour during a flight, leading to a series of life-altering events. Diagnosed with a large acoustic neuroma, Nicole faced significant challenges, including hearing loss and paralysis, yet she has transformed her experience into a mission to raise awareness for brain tumours through marathon running.

Last updated: 05 October 2023 (BST)

Key Takeaways

• Nicole Cutler lost her hearing suddenly during a flight in May 2021.
• She was diagnosed with an acoustic neuroma, a benign brain tumour, after living with it for 15 years.
• Her first surgery only removed half of the tumour, leading to severe complications.
• Nicole has since committed to running six major marathons to raise awareness for brain tumours.
• She underwent a second surgery involving a nerve graft to restore facial movement.

The Start of an Unforeseen Journey

In May 2021, Nicole Cutler boarded a flight from California to Massachusetts, expecting a routine journey. However, a sudden loss of hearing marked the beginning of a harrowing experience. She felt the usual pressure change and pop in her ears but was met with a deafening silence instead. This shocking incident prompted Nicole to seek help, leading to the discovery of a significant medical condition that had been silently affecting her life for years.

Diagnosis: The Unseen Threat

After her hearing loss, Nicole consulted an audiologist who referred her for an MRI scan. This diagnostic procedure revealed the presence of a large acoustic neuroma, a benign tumour situated on the hearing and balance nerves. The size of the tumour was substantial, comparable to an avocado, and it had been pressing against her brain for an astonishing 15 years. Nicole reflected on her past, recalling signs that were overlooked or dismissed, such as clumsiness and vertigo. These hints, combined with her sudden deafness, finally led to a shocking diagnosis.

The Impact of the Tumour

Receiving the news of her diagnosis was overwhelming. Nicole described the moment as the scariest of her life, particularly at such a young age of 22. The weight of this revelation was compounded by the immediate need for medical intervention. On 27 July 2021, she underwent a lengthy surgery aimed at removing the tumour. However, after 12 arduous hours, the medical team could only excise half of the mass due to its entanglement with her facial nerve.

Life After Surgery: Physical and Emotional Challenges

Post-surgery, Nicole faced significant physical challenges. She experienced paralysis on the right side of her body, affecting her ability to walk and move her right arm. This life-altering condition forced her into a state of dependency and fear. “I lost all my balance,” she expressed. "I lost my motor function in my right hand, and my face was paralysed on the right side for six months.”

Nicole’s road to recovery was arduous. She engaged in outpatient therapy, undergoing facial therapy, speech therapy, and physical therapy for two months to regain her strength and abilities. Each small victory was hard-earned, and the emotional toll was substantial.

Understanding Acoustic Neuroma

Acoustic neuroma, also known as vestibular schwannoma, is a benign tumour that arises from the Schwann cells, which insulate the vestibular nerve responsible for balance and hearing. While benign, these tumours can cause significant health complications due to their location. Symptoms often include hearing loss, tinnitus (ringing in the ears), and balance issues. Nicole’s experience highlights the importance of early detection and understanding of these tumours, especially given that they can grow undetected for years.

Second Surgery: A Fight for Recovery

As if the challenges from her first surgery weren’t enough, Nicole faced another hurdle in August 2024. The ongoing effects of her previous surgery necessitated a second major procedure—a nerve graft. Surgeons took a nerve from her left foot and leg and grafted it to her face in hopes of restoring some of her facial movement and sensation. This complex surgery required Nicole to learn to walk again and adapt to a new reality. “It meant learning to walk again for a second time,” she recalled, illustrating the resilience she had to muster.

Running for Awareness and a Cause

Despite the physical and emotional challenges she faced, Nicole emerged with a renewed sense of purpose. Following her initial surgery, she made a bold pledge: to run all six major marathons around the world to raise awareness for brain tumours. She has successfully completed the Boston, London, Chicago, and New York Marathons, with plans to tackle the Berlin Marathon in September. Her determination is not just for personal achievement; it is driven by her desire to advocate for those affected by brain tumours.

Finding Strength Through Adversity

Nicole’s journey has been marked by loss, but she has also discovered profound strength and purpose. “I may never get my full smile back, but I’m learning to smile fully with my heart,” she reflected. With every race she completes, she channels her experiences into a broader mission to support the brain tumour community. “I’m not just running for myself,” she explains. “I’m running for the entire brain tumour community, for patients facing impossible decisions, for survivors rebuilding their lives, for researchers fighting for a cure, and for families who’ve lost someone they love.”

What’s Next for Nicole?

Nicole’s story is ongoing, and while she faces uncertainties regarding potential tumour growth, she remains hopeful and determined. Medical professionals have indicated that if her tumour grows again, they will proceed with complete removal. This prospect is daunting, yet Nicole chooses to focus on her recovery and her advocacy efforts.

The Importance of Awareness and Support

Nicole’s experience sheds light on the importance of awareness regarding brain tumours, particularly benign types like acoustic neuroma. Early detection is crucial, and sharing stories can inspire others to seek help for symptoms that may seem insignificant at first. The brain tumour community is filled with individuals and families navigating similar challenges, and collective efforts can lead to advancements in research and treatment options.

Conclusion

Nicole Cutler’s journey is a testament to resilience and hope in the face of adversity. Through her struggles, she has emerged not only as a survivor but also as an advocate for change. Her marathons are more than just races; they represent a commitment to raising awareness and supporting others affected by brain tumours. As she continues her journey, Nicole exemplifies the spirit of perseverance and community, demonstrating that while challenges may arise, strength and purpose can lead to positive change.

FAQs

What is an acoustic neuroma?

An acoustic neuroma is a benign tumour that develops on the vestibular nerve, which connects the inner ear to the brain. It can affect hearing and balance, often requiring surgical intervention if it grows large enough.

How is an acoustic neuroma diagnosed?

Diagnosis typically involves a hearing test followed by imaging studies like an MRI. These tests help identify the tumour's presence and determine its size and impact on surrounding structures.

What are the common symptoms of acoustic neuroma?

Common symptoms include hearing loss, tinnitus (ringing in the ears), balance issues, and, in some cases, facial numbness or weakness. Symptoms often develop gradually, making early detection challenging.

What are the treatment options for acoustic neuroma?

Treatment options include monitoring the tumour, surgical removal, and in some cases, radiation therapy. The choice depends on the tumour size, symptoms, and the patient's overall health.

Can acoustic neuromas return after treatment?

While acoustic neuromas are generally benign, they can recur even after surgical removal or radiation treatment. Regular follow-up with healthcare professionals is essential for monitoring.

Call to Action

Nicole Cutler’s inspiring story invites us to reflect on our health and the importance of listening to our bodies. Awareness and early detection can save lives, and by supporting causes like brain tumour awareness, we contribute to vital research and support for those in need. Let's continue to advocate for change and stand together as a community in the face of such challenges. #BrainTumourAwareness #RunForACure #SurvivorStrength